His Brother's Keeper: A Story from the Edge of Medicine

His Brother's Keeper: A Story from the Edge of Medicine

His Brother's Keeper: A Story from the Edge of Medicine [KINDLE] ❂ His Brother's Keeper: A Story from the Edge of Medicine By Jonathan Weiner – Capitalsoftworks.co.uk From Jonathan Weiner, Pulitzer Prize winning author of The Beak of the Finch, comes His Brother s Keeper the story of a young entrepreneur who gambles on the risky science of gene therapy to try to sa From Jonathan Weiner, Pulitzer Prize winning Keeper: A PDF ´ author of The Beak of the Finch, comes His Brother s Keeper the story of a young entrepreneur who gambles on the risky science of gene therapy to try to save his brother s lifeStephen Heywood was twenty nine years old when he learned that he was dying of ALS Lou Gehrig s disease Almost overnight his older brother, Jamie, turned himself into a genetic engineer His Brother's ePUB ´ in a quixotic race to cure the incurable His Brother s Keeper is a powerful account of their story, as they travel together to the edge of medicineThe book brings home for all of us the hopes and fears of the new biology In this dramatic and suspenseful narrative, Jonathan Weiner gives us a remarkable portrait of science and medicine today We learn about gene therapy, stem cells, brain vaccines, and other novel Brother's Keeper: A PDF ☆ treatments for such nerve death diseases as ALS, Alzheimer s, and Parkinson s diseases that afflict millions, and touch the lives of manyIt turns out that the author has a personal stake in the story as well When he met the Heywood brothers, his own mother was dying of a rare nerve death disease The Heywoods gene therapist offered to try to save her, too The Heywoods story taught me many things about the nature of healing in the new millennium, Weiner writes They also taught me about what has not changed since the time of the ancients and may never change as long as there are human beings about what Lucretius calls the ever living wound of love The Heywoods mean the whole story to me now an allegory from the edge of medicine A story to make us ask ourselves questions that we have to ask but do not want to ask How much of life can we engineer How much is permitted us What would you do to save your brother s life.


About the Author: Jonathan Weiner

Jonathan Weiner is one of the Keeper: A PDF ´ most distinguished popular science writers in the country His books have won the Pulitzer Prize, the National Book Critics Circle Award and the Los Angeles Times Book Prize A former editor at The Sciences and a writer for The New Yorker, he is the author of The Beak of the Finch, Time, Love, Memory, His Brother s Keeper among many others He currently lives in New His Brother's ePUB ´ York with his wife, Deborah Heiligman who is the children s book author, and their two sons There he teaches science writing at Columbia University s Graduate School of Journalism.



10 thoughts on “His Brother's Keeper: A Story from the Edge of Medicine

  1. Cathy Cathy says:

    Learnedthan I ever knew about Lou Gehrig s disease, from a very personal point of view I was disappointed in Weiner s writing I was expecting the incredible writing of Beak of the Finch, but found instead a story he couldn t quite seem to pull together Perhaps it was too personal for him, since his mother was dying of a nerve disease at the same time and he tried to incorporate that into the story Still a powerful glimpse of people doing all they can to get through a life and death sit Learnedthan I ever knew about Lou Gehrig s disease, from a very personal point of view I was disappointed in Weiner s writing I was expecting the incredible writing of Beak of the Finch, but found instead a story he couldn t quite seem to pull together Perhaps it was too personal for him, since his mother was dying of a nerve disease at the same time and he tried to incorporate that into the story Still a powerful glimpse of people doing all they can to get through a life and death situation


  2. Sharon Bird Sharon Bird says:

    GRIPPING, A ROLLER COSTER RIDE TO SAVE A LIFEFrantic to save his brother s life when time is of the essence, Jamie vertually climbs mountains to rein in the best of the best scientists, researchers doctors to save his beloved from a horrific death caused by ALS We join the brothers their family as they race against time to find a cure for this horrific disease The first two chapters, which educate the reader about the technical mechanics of the brain or should I say, the dysfunction of th GRIPPING, A ROLLER COSTER RIDE TO SAVE A LIFEFrantic to save his brother s life when time is of the essence, Jamie vertually climbs mountains to rein in the best of the best scientists, researchers doctors to save his beloved from a horrific death caused by ALS We join the brothers their family as they race against time to find a cure for this horrific disease The first two chapters, which educate the reader about the technical mechanics of the brain or should I say, the dysfunction of the brain of ALS patients are rather dry However, the rest of the story takes the reader on Jamie s warp speed race against time


  3. Allyson Dyar Allyson Dyar says:

    I ordered this hardback around 2005 from the Scientific American BookClub because I needed another book to fulfill my commitment Nothingreally hit my fancy and since I desperately needed to select something, My Brother s Keeper by Jonathan Weiner was reluctantly selected.For five years, the book sat upon my shelf I d picked up the bookseveral times and each time, opted not to read it Finally, I took theplunge because my newly ordered books hadn t arrived yet and I neededanother book to read I ordered this hardback around 2005 from the Scientific American BookClub because I needed another book to fulfill my commitment Nothingreally hit my fancy and since I desperately needed to select something, My Brother s Keeper by Jonathan Weiner was reluctantly selected.For five years, the book sat upon my shelf I d picked up the bookseveral times and each time, opted not to read it Finally, I took theplunge because my newly ordered books hadn t arrived yet and I neededanother book to read My gut reaction was that I wasn t going to enjoythis read all that much and, much to my dismay, I wasn t disappointed.As I read the first few chapters of this book while traveling home fromwork, my initial impression was pretentious twaddle My subsequentview of the book mellowed as I realized that the author was telling hismother s neurological story scattered amongst his relating the tale ofJamie Heywood s valiant effort to save his brother Stephen from ALS also knownas Lou Gehrig s Disease side note this disease is most notable forbeing named after a famous patient rather than the researcher whocreated the definition documentation of the affliction My Brother s Keeper takes the reader from pre diagnosis to diagnosisand the new frontier of gene therapy leaving the reader to conclude theinevitable at book s end.I am an avid reader of medical history books and unfortunately, I can trecommend this book In fact, I m giving serious consideration toditching the book, a decision I don t take likely I have over 50 booksdedicated solely to anatomy and physiology I view the removal of a bookfrom my library very seriously.I m really not sure what audience this book is aimed at At times, thisbook waxes poetically about the subject at hand, other times, in delvesinto the complex world of cloning, recombinant DNA and stem cell therapy heady subjects for a book written in a way that would be bettersuited to the modern fiction section of a book store than a true life adventure The story itself was compelling without surrounding the readerwith such florid prose.I will give props to the author for taking these fairly complex subjectsand expertly distilling them to a primarily lay audience All in all, I found the book to ultimately be an unsatisfactoryexperience but I m sure there are others who will enjoy itthan Idid


  4. Kristin Kristin says:

    This book was good, but could have been better, as it wound down rather rapidly that I wasn t sure what had happened The author follows the story of the Heywood brothers, white collar Jamie, an engineer, who leaves his job to pursue a biologic solution to cure his brother, blue collar Stephen s ALS Stephen takes his diagnosis in stride, continuing to restore homes while his limbs grow progressively weaker and willing to volunteer as his brother s test subject if a treatment is found Stephen i This book was good, but could have been better, as it wound down rather rapidly that I wasn t sure what had happened The author follows the story of the Heywood brothers, white collar Jamie, an engineer, who leaves his job to pursue a biologic solution to cure his brother, blue collar Stephen s ALS Stephen takes his diagnosis in stride, continuing to restore homes while his limbs grow progressively weaker and willing to volunteer as his brother s test subject if a treatment is found Stephen is diagnosed in 1998, at the beginning of both the dot com boom and stem cell research, so Jamie finds both funding and scientists full of ideas who are up to the challenge of making strides against ALS While Jamie learns that most research and therapy development takes 5 10 years to be available to treat patients, he knows that his brother is unlikely to havethan a year or two, and pushes forward trying to cut corners where possible without sacrificing quality and using his charm to get things done.Meanwhile, the author finds a personal connection to Jamie s quest, as his mother is rapidly experiencing a form of dementia, and Weiner feels that progress made for ALS could eventually be applied towards curing this disease, though Weiner s mother is likely to be too far advanced in her disease to benefit from any treatments that may be found Weiner is a science writer and tries to remain neutral, not wanting to allow feelings for Stephen s plight to bias his writing, but also not wanting to express his skepticism that Jamie s full throttle approach will be all he had hoped for.Overall, I enjoyed the book for the most part, though once the dot com bubble bursts and stem cell research gets curtailed, the book ends quickly, but the premise is interesting nonetheless, and I am curious to see if Jamie s ALS foundation is still running, as the cure still has yet to be found


  5. Camille Camille says:

    Jonathan Weiner chose to become a writer over studying biology and ended up writing about science In his words he isn t exactly a science writer Rather, he says, I m trying to tell a true story with all the tools of narrative And this most personal of his books tells an extraordinary story a race against time, Jamie Heywood s, to find the miracle cure for ALS and save Stephen Heywood In the context of the story, Weiner discloses background and research in biomedical and neurosciences, neur Jonathan Weiner chose to become a writer over studying biology and ended up writing about science In his words he isn t exactly a science writer Rather, he says, I m trying to tell a true story with all the tools of narrative And this most personal of his books tells an extraordinary story a race against time, Jamie Heywood s, to find the miracle cure for ALS and save Stephen Heywood In the context of the story, Weiner discloses background and research in biomedical and neurosciences, neurodegenerative diseases, the brain, DNA, gene therapy, stem cells etc In addition, the major players in the Heywood story are primary researchers and doctors in those fields Also, as the story unfolds, we are privy to the personal conflicts and tragedies of real life characters While writing this story, Weiner was writer in residence at Rockefeller University, a world renowned center with 76 laboratories for conducting research and providing graduate education in the biomedical sciences, chemistry, bioinformatics and physics His only responsibility was to teach a graduate seminar to young biologists and medical students, Parallel Lines Science and Literature In his words he was there to give these students who were working at their laboratory benches for 12 15 hours a day an excuse to read I find this approach to science education so very interesting The literary quotes sprinkled through the text also illuminate the science and the human conflicts associated with that science


  6. Katherine Katherine says:

    In this fantastic book, Jonathan Weiner delves into the lives of two brothers, Jamie and Stephen, as they tried to find a cure for ALS otherwise known as Lou Gehrig s disease Jamie, an engineer by education, makes it his life s mission to study and find a cure for ALS after Stephen was diagnosed with having the disease Stephen, a carpenter, allows his brother to become highly involved with his life and treatments, and Jamie desperately tries to find a cure This zeal eventually leads to the In this fantastic book, Jonathan Weiner delves into the lives of two brothers, Jamie and Stephen, as they tried to find a cure for ALS otherwise known as Lou Gehrig s disease Jamie, an engineer by education, makes it his life s mission to study and find a cure for ALS after Stephen was diagnosed with having the disease Stephen, a carpenter, allows his brother to become highly involved with his life and treatments, and Jamie desperately tries to find a cure This zeal eventually leads to the destruction of Jamie s marriage and financial situation Weiner follows the course of Stephen s illness using the present tense, and he also ties in his own first person narration as he interacts with the brothers Weiner moves back and forth between the scientific implications of ALS and Jamie and Stephen s life story The author s ability to honestly assess the characters, particularly Jamie, allows the reader to empathize strongly with the story Weiner also reflects upon his own fears and weaknesses with respect toward his mother, who is also suffering from a progressive illness of her nerves This self reflection is compelling and, in short, Weiner s book is outstanding


  7. Crosby Crosby says:

    A story of two brothers one of which is dying of an incurable genetic problem called Lou Gehrig s disease Knowing that this disease is currently incurable and invariably fatal, i was not optimistic that this book would have a satisfying end This turned out to be true The author does a good job of conveying the personal trials and tribulations of the family but in the end could not transform a sad story into something better The quest of a brother to speed up the process of genetic therapy to A story of two brothers one of which is dying of an incurable genetic problem called Lou Gehrig s disease Knowing that this disease is currently incurable and invariably fatal, i was not optimistic that this book would have a satisfying end This turned out to be true The author does a good job of conveying the personal trials and tribulations of the family but in the end could not transform a sad story into something better The quest of a brother to speed up the process of genetic therapy to help his dying sibling was the centerpiece of this story The interaction of regulatory agencies, researchers and investors in their race for a cure was well documented by the author but it was also evident that this sort of race can only be won after a considerable expenditure of time something this family did not have


  8. Kristin Kristin says:

    this book is about the brothers Ben and Jamie Heywood that founded the company I work for there is a movie too, So Much So Fast I found this book very interesting, but it felt a bit patchy at times and the pace was a little funny some parts I zipped through and at some points I put the book down for a couple of days before picking it up again While reading it I felt a little like I was spying on Ben and Jamie Heywood I would read on the bus and then get to work and Ben would ask me some this book is about the brothers Ben and Jamie Heywood that founded the company I work for there is a movie too, So Much So Fast I found this book very interesting, but it felt a bit patchy at times and the pace was a little funny some parts I zipped through and at some points I put the book down for a couple of days before picking it up again While reading it I felt a little like I was spying on Ben and Jamie Heywood I would read on the bus and then get to work and Ben would ask me something about our financials, very weird


  9. Ronald Wise Ronald Wise says:

    A truly extraordinary tale directly involving some of the biggest ethical issues at the end of the 20th century The true story of James Heywood s manic attempt to find a fast track cure for his brother Stephen, who has been diagnosed with ALS Directly linked to the big stories of the time stem cell research, cloning, and genetic engineering this book provided an inside look at the dynamics behind the developments then appearing in the media headlines frequently.


  10. Amanda Carver Amanda Carver says:

    Started off amazing true story of a brother who became a genetic engineer when his 29 yr old brother was diagnosed with ALS The trouble is that the race to find a cure starts out all frantic and fast paced and then drops off a cliff, and the novel does the same If the author haddirectly addressed that this was what was happening, I think I would have beensatisfied Still, it was a fascinating read.


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10 thoughts on “His Brother's Keeper: A Story from the Edge of Medicine

  1. Cathy Cathy says:

    Learnedthan I ever knew about Lou Gehrig s disease, from a very personal point of view I was disappointed in Weiner s writing I was expecting the incredible writing of Beak of the Finch, but found instead a story he couldn t quite seem to pull together Perhaps it was too personal for him, since his mother was dying of a nerve disease at the same time and he tried to incorporate that into the story Still a powerful glimpse of people doing all they can to get through a life and death sit Learnedthan I ever knew about Lou Gehrig s disease, from a very personal point of view I was disappointed in Weiner s writing I was expecting the incredible writing of Beak of the Finch, but found instead a story he couldn t quite seem to pull together Perhaps it was too personal for him, since his mother was dying of a nerve disease at the same time and he tried to incorporate that into the story Still a powerful glimpse of people doing all they can to get through a life and death situation

  2. Sharon Bird Sharon Bird says:

    GRIPPING, A ROLLER COSTER RIDE TO SAVE A LIFEFrantic to save his brother s life when time is of the essence, Jamie vertually climbs mountains to rein in the best of the best scientists, researchers doctors to save his beloved from a horrific death caused by ALS We join the brothers their family as they race against time to find a cure for this horrific disease The first two chapters, which educate the reader about the technical mechanics of the brain or should I say, the dysfunction of th GRIPPING, A ROLLER COSTER RIDE TO SAVE A LIFEFrantic to save his brother s life when time is of the essence, Jamie vertually climbs mountains to rein in the best of the best scientists, researchers doctors to save his beloved from a horrific death caused by ALS We join the brothers their family as they race against time to find a cure for this horrific disease The first two chapters, which educate the reader about the technical mechanics of the brain or should I say, the dysfunction of the brain of ALS patients are rather dry However, the rest of the story takes the reader on Jamie s warp speed race against time

  3. Allyson Dyar Allyson Dyar says:

    I ordered this hardback around 2005 from the Scientific American BookClub because I needed another book to fulfill my commitment Nothingreally hit my fancy and since I desperately needed to select something, My Brother s Keeper by Jonathan Weiner was reluctantly selected.For five years, the book sat upon my shelf I d picked up the bookseveral times and each time, opted not to read it Finally, I took theplunge because my newly ordered books hadn t arrived yet and I neededanother book to read I ordered this hardback around 2005 from the Scientific American BookClub because I needed another book to fulfill my commitment Nothingreally hit my fancy and since I desperately needed to select something, My Brother s Keeper by Jonathan Weiner was reluctantly selected.For five years, the book sat upon my shelf I d picked up the bookseveral times and each time, opted not to read it Finally, I took theplunge because my newly ordered books hadn t arrived yet and I neededanother book to read My gut reaction was that I wasn t going to enjoythis read all that much and, much to my dismay, I wasn t disappointed.As I read the first few chapters of this book while traveling home fromwork, my initial impression was pretentious twaddle My subsequentview of the book mellowed as I realized that the author was telling hismother s neurological story scattered amongst his relating the tale ofJamie Heywood s valiant effort to save his brother Stephen from ALS also knownas Lou Gehrig s Disease side note this disease is most notable forbeing named after a famous patient rather than the researcher whocreated the definition documentation of the affliction My Brother s Keeper takes the reader from pre diagnosis to diagnosisand the new frontier of gene therapy leaving the reader to conclude theinevitable at book s end.I am an avid reader of medical history books and unfortunately, I can trecommend this book In fact, I m giving serious consideration toditching the book, a decision I don t take likely I have over 50 booksdedicated solely to anatomy and physiology I view the removal of a bookfrom my library very seriously.I m really not sure what audience this book is aimed at At times, thisbook waxes poetically about the subject at hand, other times, in delvesinto the complex world of cloning, recombinant DNA and stem cell therapy heady subjects for a book written in a way that would be bettersuited to the modern fiction section of a book store than a true life adventure The story itself was compelling without surrounding the readerwith such florid prose.I will give props to the author for taking these fairly complex subjectsand expertly distilling them to a primarily lay audience All in all, I found the book to ultimately be an unsatisfactoryexperience but I m sure there are others who will enjoy itthan Idid

  4. Kristin Kristin says:

    This book was good, but could have been better, as it wound down rather rapidly that I wasn t sure what had happened The author follows the story of the Heywood brothers, white collar Jamie, an engineer, who leaves his job to pursue a biologic solution to cure his brother, blue collar Stephen s ALS Stephen takes his diagnosis in stride, continuing to restore homes while his limbs grow progressively weaker and willing to volunteer as his brother s test subject if a treatment is found Stephen i This book was good, but could have been better, as it wound down rather rapidly that I wasn t sure what had happened The author follows the story of the Heywood brothers, white collar Jamie, an engineer, who leaves his job to pursue a biologic solution to cure his brother, blue collar Stephen s ALS Stephen takes his diagnosis in stride, continuing to restore homes while his limbs grow progressively weaker and willing to volunteer as his brother s test subject if a treatment is found Stephen is diagnosed in 1998, at the beginning of both the dot com boom and stem cell research, so Jamie finds both funding and scientists full of ideas who are up to the challenge of making strides against ALS While Jamie learns that most research and therapy development takes 5 10 years to be available to treat patients, he knows that his brother is unlikely to havethan a year or two, and pushes forward trying to cut corners where possible without sacrificing quality and using his charm to get things done.Meanwhile, the author finds a personal connection to Jamie s quest, as his mother is rapidly experiencing a form of dementia, and Weiner feels that progress made for ALS could eventually be applied towards curing this disease, though Weiner s mother is likely to be too far advanced in her disease to benefit from any treatments that may be found Weiner is a science writer and tries to remain neutral, not wanting to allow feelings for Stephen s plight to bias his writing, but also not wanting to express his skepticism that Jamie s full throttle approach will be all he had hoped for.Overall, I enjoyed the book for the most part, though once the dot com bubble bursts and stem cell research gets curtailed, the book ends quickly, but the premise is interesting nonetheless, and I am curious to see if Jamie s ALS foundation is still running, as the cure still has yet to be found

  5. Camille Camille says:

    Jonathan Weiner chose to become a writer over studying biology and ended up writing about science In his words he isn t exactly a science writer Rather, he says, I m trying to tell a true story with all the tools of narrative And this most personal of his books tells an extraordinary story a race against time, Jamie Heywood s, to find the miracle cure for ALS and save Stephen Heywood In the context of the story, Weiner discloses background and research in biomedical and neurosciences, neur Jonathan Weiner chose to become a writer over studying biology and ended up writing about science In his words he isn t exactly a science writer Rather, he says, I m trying to tell a true story with all the tools of narrative And this most personal of his books tells an extraordinary story a race against time, Jamie Heywood s, to find the miracle cure for ALS and save Stephen Heywood In the context of the story, Weiner discloses background and research in biomedical and neurosciences, neurodegenerative diseases, the brain, DNA, gene therapy, stem cells etc In addition, the major players in the Heywood story are primary researchers and doctors in those fields Also, as the story unfolds, we are privy to the personal conflicts and tragedies of real life characters While writing this story, Weiner was writer in residence at Rockefeller University, a world renowned center with 76 laboratories for conducting research and providing graduate education in the biomedical sciences, chemistry, bioinformatics and physics His only responsibility was to teach a graduate seminar to young biologists and medical students, Parallel Lines Science and Literature In his words he was there to give these students who were working at their laboratory benches for 12 15 hours a day an excuse to read I find this approach to science education so very interesting The literary quotes sprinkled through the text also illuminate the science and the human conflicts associated with that science

  6. Katherine Katherine says:

    In this fantastic book, Jonathan Weiner delves into the lives of two brothers, Jamie and Stephen, as they tried to find a cure for ALS otherwise known as Lou Gehrig s disease Jamie, an engineer by education, makes it his life s mission to study and find a cure for ALS after Stephen was diagnosed with having the disease Stephen, a carpenter, allows his brother to become highly involved with his life and treatments, and Jamie desperately tries to find a cure This zeal eventually leads to the In this fantastic book, Jonathan Weiner delves into the lives of two brothers, Jamie and Stephen, as they tried to find a cure for ALS otherwise known as Lou Gehrig s disease Jamie, an engineer by education, makes it his life s mission to study and find a cure for ALS after Stephen was diagnosed with having the disease Stephen, a carpenter, allows his brother to become highly involved with his life and treatments, and Jamie desperately tries to find a cure This zeal eventually leads to the destruction of Jamie s marriage and financial situation Weiner follows the course of Stephen s illness using the present tense, and he also ties in his own first person narration as he interacts with the brothers Weiner moves back and forth between the scientific implications of ALS and Jamie and Stephen s life story The author s ability to honestly assess the characters, particularly Jamie, allows the reader to empathize strongly with the story Weiner also reflects upon his own fears and weaknesses with respect toward his mother, who is also suffering from a progressive illness of her nerves This self reflection is compelling and, in short, Weiner s book is outstanding

  7. Crosby Crosby says:

    A story of two brothers one of which is dying of an incurable genetic problem called Lou Gehrig s disease Knowing that this disease is currently incurable and invariably fatal, i was not optimistic that this book would have a satisfying end This turned out to be true The author does a good job of conveying the personal trials and tribulations of the family but in the end could not transform a sad story into something better The quest of a brother to speed up the process of genetic therapy to A story of two brothers one of which is dying of an incurable genetic problem called Lou Gehrig s disease Knowing that this disease is currently incurable and invariably fatal, i was not optimistic that this book would have a satisfying end This turned out to be true The author does a good job of conveying the personal trials and tribulations of the family but in the end could not transform a sad story into something better The quest of a brother to speed up the process of genetic therapy to help his dying sibling was the centerpiece of this story The interaction of regulatory agencies, researchers and investors in their race for a cure was well documented by the author but it was also evident that this sort of race can only be won after a considerable expenditure of time something this family did not have

  8. Kristin Kristin says:

    this book is about the brothers Ben and Jamie Heywood that founded the company I work for there is a movie too, So Much So Fast I found this book very interesting, but it felt a bit patchy at times and the pace was a little funny some parts I zipped through and at some points I put the book down for a couple of days before picking it up again While reading it I felt a little like I was spying on Ben and Jamie Heywood I would read on the bus and then get to work and Ben would ask me some this book is about the brothers Ben and Jamie Heywood that founded the company I work for there is a movie too, So Much So Fast I found this book very interesting, but it felt a bit patchy at times and the pace was a little funny some parts I zipped through and at some points I put the book down for a couple of days before picking it up again While reading it I felt a little like I was spying on Ben and Jamie Heywood I would read on the bus and then get to work and Ben would ask me something about our financials, very weird

  9. Ronald Wise Ronald Wise says:

    A truly extraordinary tale directly involving some of the biggest ethical issues at the end of the 20th century The true story of James Heywood s manic attempt to find a fast track cure for his brother Stephen, who has been diagnosed with ALS Directly linked to the big stories of the time stem cell research, cloning, and genetic engineering this book provided an inside look at the dynamics behind the developments then appearing in the media headlines frequently.

  10. Amanda Carver Amanda Carver says:

    Started off amazing true story of a brother who became a genetic engineer when his 29 yr old brother was diagnosed with ALS The trouble is that the race to find a cure starts out all frantic and fast paced and then drops off a cliff, and the novel does the same If the author haddirectly addressed that this was what was happening, I think I would have beensatisfied Still, it was a fascinating read.

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